Sunday 6 March 2011

Protection

I dreamt about Georgina last night. I don't dream about her very often so it was a little unsettling but nice, all at once.

The Georgina of my dreams is generally herself, as she was in life, an extremely premature baby. Red, thin and bruised. Either that or a strange near-facsimile of her twin sister.

In the dream, Georgina was wading in a stream. It didn't seem unusual to the 'me of the dream' that Georgina could walk, let alone wade. The stream must have been extremely shallow as she was very small. I was concerned that she would slip and fall down in the water. There was a sinister looking fish lurking off to one side and I was worried that he might try to eat her or inadvertently knock her down.

But I didn't pick her out of the water. She seemed to be enjoying herself with the paddling.  So I just leant down and looked her in the face. Her face was so familiar. I thought, I'll just keep an eye on her to check that no good fish doesn't approach her and to make sure that the water stays under her chin.

A thought crossed my dream mind,  'Well Georgina, here you are happily wading in the stream. I thought you were dead all this time.'

Then I woke up.
And I realised that she is dead.
Still takes me by surprise some mornings.

***

30 weeks pregnant. A gestation in double figures that starts with a 3. Unknown and unexpected territory although still, as I don't need to tell you, no guarantee of anything.

It makes me feel so tender and protective of this little one inside and of his big sisters. They never really stood a chance, they were so under prepared. I never wanted my daughters to be born into an ethical and economic shit storm where so many seem to have an opinion on those little lives, on the validity of those bodies, those people.
On how much they cost.
On whether their chances of disability rendered them a poor investment.
On whether I am one of the selfish parents that pushes medical technology further into the outer realms than is appropriate.
I know there is only so much to go around but . . . it is hard to hear people speak about your own children in that way. Particularly when you consider the resources expended on patching up drunks every weekend of the year.

As a healthy 29 year old, I decided to start a family.
I didn't smoke, drink or take drugs during my pregnancy.
I took my vitamins and attended all my antenatal appointments.
I didn't expect anything to go awry.
In fact, I thought that my twin pregnancy was auspicious. A sign that my body could manage two babies. (Laughs heartily at former stupidity)
I thought my body was a fortress, that I could monitor what went in and what was going on inside.
That nothing could harm my children, that I could protect them.
As it turned out, once they were born, I could do absolutely nothing.
Not even make the decision as to whether they would receive treatment or not.

I wish I could blow myself up like some giant inflatable and throw myself around the whole damn situation. Puff up like a bull frog and absorb the impact of all the blows that land on my family as a result of a something that we didn't ask for. Become an ever expanding roll of human bubble wrap and spin myself out around my family. Protect Jessica from the consequences of her prematurity and the judgements that others will make about her worth and her prospects, protect Georgina from myself and perhaps even from the doctors. Wrap myself around her and just let her die in peace. But it's too late.

I always liked this song. But I always wondered why the singer sounded so sad. I thought it was a triumphant song, about a person standing in front of someone that they loved, taking the force of the blow for that person.

But now I think I understand. You can't protect anyone.
I've never felt as protective of anybody as I did over my daughters. Those two tiny, fragile beings.
But you can't fight biology.
Love can't defeat broken kidneys.
Caring can't cure sepsis.
I couldn't overrule those tiny broken bodies simply because I wanted to or felt as though I could.
But those bodies belonged to my children and I loved them. Those people, those bodies.
Not merely collections of disabilities or expense. Not to me.

Love, luck, prayer or hope. None of these things can guarantee a future for their brother either.
It's all a horrible, horrible game of chance.
One in which most people will never even know that they have been a participant.

But the standing in front of them regardless, perhaps that is the trick of it all?
The brave, foolhardy, crazy and futile attempt. Just to say that I tried to protect them.
So I stand here. In front of Jessica and this baby and Georgina's memory.
I stand here uselessly. Watching.
But not running away.

22 comments:

  1. Oh Catherine. This made me cry. Because it is so hard, to know that you can't protect them from the really hard things. But also because I realised as I listened to the song that this is exactly what Z did for me, she took the force of the blow, quite literally.

    And I think you are right - that to stand in front of them and bear witness, even if you can't protect them, is something amazing in itself.

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  2. Not useless... Never useless.

    Your words never cease to amaze me and, usually, render me speechless. Hugs, my dear friend...

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  3. I often wish I could dream more of Cullen.. it's those little moments when I just want to replay certain images of him in my mind, but can't get it to feel 'real'- if that makes any sense.
    Thinking of you....

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  4. i can understand in a way people discussing the financial worth of your children's lives. it's not quite the same, but i often feel so defensive hearing or reading debates about whether health insurance companies should cover fertility-related procedures, medicines, or treatments. because, you know, there's overpopulation, and survival of the fittest, and all the other reasons why my hubby and i apparently didn't deserve to experience parenthood just because our reproductive systems don't work quite right. it's frustrating and maddening when people discuss decisions that are so close to your heart.
    congrats on 30 weeks. even though it is no guarantee, i hope it feels good to have made it to this point.

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  5. I know this pregnancy is long (that's a good thing!) and hard. Just 10 more weeks...

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  6. Strange, one of the only dreams I ever had about Hope involved water. Must look further in to that....
    And 30 weeks. Oh mama. So close but I still know so far. I think you are doing an amazing job, just as you did an amazing job with both your daughters. I still see so much of myself in your words, despite how different our stories are. I can't believe how smug and trusting I was either.
    xo

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  7. I wish I could blow myself up like some giant inflatable and throw myself around the whole damn situation. Puff up like a bull frog and absorb the impact of all the blows that land on my family as a result of a something that we didn't ask for. Become an ever expanding roll of human bubble wrap and spin myself out around my family.

    This is an incredible piece of writing, Catherine.

    I saw your FB update and started to read the linked article, but had to stop. Then I thought about what a privilege it is to be able to walk away like that. All of those people, all of those yacking, opinionated people can just walk away from that debate when they're done. They're clumsy in their privilege - I think we all are to different extents - and it's left to you, already raw, to try to educate them.

    I'm so sorry, my lovely, so sorry.

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  8. Just giving a small and quiet whoop for a number that starts with a 3.

    I haven't dreamed of Emma for a very long time now. I used to like it when I did.

    I struggle with ideas of protecting too. I long to wrap my [living] children in cotton wool and hide them away but know that I can't.

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  9. Christine (Anna's Mommy)7 March 2011 at 10:00

    Catherine, you are in my heart. I am pleased to hear you are now 30 weeks. I can't even iamgine all of the thoughts going through your head. Keep breathing. I feel so protective of Anna, too. I so despised the way that she was discussed after she died. Like she was a "case" or a "patient".. She's my baby. That's my daughter. I miss my daughter so much, too. You are on my mind. xo

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  10. It's so sad and so frustrating that there is nothing we can do to guarantee the futures of our children. And yet, making it to 30 weeks is something, and I'm glad you've made it this far. Thinking of you as you continue down this road. xx

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  11. "And I realised that she is dead.
    Still takes me by surprise some mornings."

    Amazing how death continues to surprise and catch us off guard isn't it. The other thing I learn over and over and over again is that it is forever.

    "Love, luck, prayer or hope. None of these things can guarantee a future for their brother either."
    No, but they don't hurt either. Love to you, holding hope in these last few weeks for a healthy arrival of your little boy.

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  12. I remember reading a comment on a random blog entry about ECMO, the machine that breathes and pumps blood (the one we decided, in the end, not to try) where a commenter had written that anyone needing ECMO, by the laws of evolution, wasn't supposed to live. I've never been quite so angry at a random, anonymous person on the internet, to so blithely and casually dismiss my child and anyone resembling him. And that was nothing to this.

    I wish love, luck and prayer were enough, that protection were possible.

    30 weeks - so hopeful and vulnerable a time. My fingers are crossed for you and I'm sending love.

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  13. I've been mulling this post over trying to figure out what to say. Maybe I just want to be an even bigger bullfrog to protect you and your family. I guess I'll never learn.

    30 weeks! (thanks to my late arrival it's probably more like 31 now). I'm sending every bit of positive energy I have across the ocean to you and your family. May you have 10 more weeks of discomfort ahead and a noisy, screeching baby waiting at the end.

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  14. Thirty.
    Thirty.
    Thirty.

    Amazing.

    I know you're right, and nothing will predict anything, but I am hoping and I will not stop hoping.

    Love, my friend.

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  15. Not useless. As long as you can love, you are vital to so many people.

    And 30 weeks--so glad to hear it, even though I know the number does nothing to alleviate the fear.

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  16. The very fact that any of us dares to have another child after one has been ripped out of our arms is a testament to how much we love the one who was lost. We loved being their parents so much that we couldn't imagine not having another child to share that love with, to share THEM with. And we do it despite the sheer terror that accompanies that worst of realizations that there is only so much that we can control and it's not a damn lot. This pregnancy is an act of absolute love for Georgina, and for Jessica, love that will only expand once their little brother arrives.

    Thirty weeks, Catherine. Oh, my. But I know how far away the end still seems-- oh, how much I feel it myself. Hoping against all hopes for 7-10 more weeks of our boys tucked tightly and safely inside, and for the inevitable joy that will follow once they emerge.

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  17. What you say about not being able to fight biology...

    I still, even after everything, don't understand why they can't save everyone. Why sometimes they have to give up. I don't understand why modern medicine can't save everyone.

    It should have been able to save *both* of your girls. Both of them. No matter what. I still find it hard to accept that some things are impossible.

    I've been reading even though I haven't been commenting. You know I'm rooting for you to get right the way through to the end of this pregnancy with the best possible outcome.

    Much love xx

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  18. Oh Catherine, what a beautiful post... And so true.

    "I thought you were dead all this time.'
    I still get taken by surprise some mornings too. It's like the last 3,5 years haven't happened and I wake up to a totally new normal. I still love dreaming about him.

    30 weeks and going strong. Wishing only the best.

    Much love! xo

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  19. This is such a beautiful post Catherine. Of course, as mothers, you LIVE to protect your children. And of course, it is utterly impossible, no matter how much control we think we might have. It is horrifying, terrifying, petrifying when you realize that there is nothing you can ultimately do. So...then what? Give up? You are one of the bravest people I "know", really everyone I have met in this community is so brave, because you are willing to stand up and give fate the finger and love, hope, and pray anyway. In spite of it all. And your children, ALL of them, and future generations besides will be better for it, for witnessing your strength in adversity.

    30 weeks!!!!!

    Love, Keely

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  20. I am just popping in here to tell you that I think you are amazing and i love your writing - it moves me so intensely. So much love to you xxx

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  21. god, your writing is so heart-achingly beautiful. ive missed you.
    xoxo
    lis

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